Rare Talks: When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
ZoomWhen a child is living with a rare rheumatic disease, answers often take time. Families may face long diagnostic journeys, unpredictable symptoms, and too few resources designed for their realities. Too often, their experiences remain unseen. RareTalks is a space created to change that. Held during Rare Disease Month, this annual virtual event brings together families, youth, […]
